Friday, April 16, 2010


15th and 16th April 2010

As I sit here and type this I am feeling really exhausted and my right knee and ankle are so sore and swollen and I don't know why.

Yesterday was a fairly quiet day at home, we had our Parish Priest Father Mark and Fiona his associate visit us and we had a little Mass and then Father Mark anointed me with oil and gave me a blessing and we had communion. I can not always go to Mass because we normally go on a Sunday night but I am often too tired to go, so it was extremely nice of them to make a visit to us.

I have now finished off all my paintings for the launch and have put a picture of them on this Blog entry. As you can see they are all very different and special, they are going to be auctioned at my book launch next Wednesday and I am donating 100% of the sales to the Brain Tumour Fund. The painting with the wand is called 'Hope is like a magic wand', the one underneath is 'Our path in life', next is 'Hands of Hope', then 'Bring your own sunshine', followed by 'You have to go through a storm to get to a rainbow', then there is 'The strength within your heart', then 'Magical Dreams' and last is 'Eternal like Stars'. What do you all think of them?

I helped make vegetable slice for dinner, it is really delicious and good for you because it has healthy vegetables in it. Then we went to running training, it was a bit chilly and I had a bit of a sore throat so I sat in the car with Mum and did some Sudoku puzzles.

With the cold my right knee and ankle became sore and stiff even though I have religiously done my exercises and when I tried to do a little walking, which actually is not very far at all I found myself toppling over again.

I woke several times during the night with stiffness and pain and also I had that dreadful nightmare again when Mum leaves me and even though I call her she does not turn around and I am behind a door but it isn't dark it is very bright.

I woke feeling a little tired because of my terrible night sleep but I was excited because I knew we were going to the shops today to get some things for the book launch. We have not been to the shops for ages and I like to look around especially at all the clothes. I love the girls clothes at Myer and they have some really terrific clothes in girls size 8, I like Origami and Cinnamon brand clothes the most.

When we arrived at the shops we discovered that the car park we usually park in had been closed because they are doing renovations and building at the Mall so we had to park in the overflow car park which is a makeshift dirt car park so it was a cross country ride across to the shops. The shops were pretty busy because it is school holidays. I found a beanie kid for $4.95 that is cheap they are usually $11.95 and I collect beanie kids so I was really happy with that bargain. I also got a couple of beanies to help keep my head warm with this colder weather and I found the perfect dress to wear to my book launch, I won't tell you what it looks like you can see it in the photographs from the launch when I post them.

After shopping we came home and I sprayed my paintings with a special gloss spray that protects them from dust and other marks. We had a call from The Starlight Children's Foundation about my book launch, they are very excited and they are hoping to also use my launch to promote their Starlight Day. I think it is a very good cause because they give ill children special wishes and they also run programs in the hospital if I could I would raise money for everyone but I am using my book and many other things to raise money for Brain Tumour research because for me finding a cure and treatment that has less severe side effects is the most important issue in my life at the moment.

Nalani was like a maniac all day as she is going to the Short Stack concert tonight with her friend Catrin. Nalani is such a lucky girl and she is also going to get to meet the band, she had all these questions she practised asking Jarrett and I but I bet when she is there she won't ask half of them because she will be over excited. It is a very special surprise for her from Paul who has been one of the amazing people behind my book and his son is a touring member of the band, how cool is that?

My eyes are starting to open and close and my head drop to my chest so I think it is time to publish this post, snuggle up in bed and go to sleep. It is only five days until my book launch and I need lots of rest so that I will not be tired on my special day.


lil_mizz_ally said...

Hi dainere!!!

Sounds like you have had very exciting day!!!
I hope all goes well with the book launch and everything goes well with you and you don't get to much pain!!


Anonymous said...

Dainere, Sounds like you're going great guns with organising the launch. Unfortunately I'm not going to be able to make your launch :( , but i'm very flattered by the invitation. I know you'll have a fantastic day and I can't wait to get my hands on a personally signed copy of your book. See you soon. xx Rhiannon

Anonymous said...

Dear Dainere
We do hope your knee and ankle settle down and that you get a few good nights sleep before your big day.

We absolutely love your paintings. We are drawn to three of them especially and it is making it very difficult for us to decide which one we would choose to purchase.

Because we can't be there on Wednesday, and therefore wont be among the many people who we are sure will be bidding on them, we hope we can purchase one from you. We will let you know before Wednesday the one we would like or perhaps Nalani could bid for us if we tell her our bid.

We are really looking forward to seeing you in your new dress. Bet it is really beautiful, just like you.

Sleep well and have a lovely weekend.

All our love
Nan and Pop xxx ooo

Anonymous said...

Dear Dainere
Your paintings look fantastic and I know they will be a big hit at the launch. You have done a great job as usual. Well done.
It sounds like you did some great shopping today too. Great bargain on the beanie kid! I can't wait to see your new dress. I imagine you will look like a princess at the launch.
Only 5 more sleeps to go!
Lots of love and hugs
Tess xxxxxx