26th to 28th October 2010
I have now been seen by a marvellous paediatrician who has looked into many aspects of my illness, surgery, treatment and how I am now. It appears that this could all be an Endocrine issue which goes as far back as to the beginning of my chemotherapy. Basically I stopped growing, I have not grown in a year, my tumour in the pituitary has stopped me growing and it can also affect your metabolism, so I now have to see a new Endocrinologist and it is likely I will be put on daily hormone injections.
My xray results came back, I do not have a fracture but I now have to have an MRI as it is suspected I have a stress fracture or severs disease which is a tendon problem. I have seen a cardiologist and my heart is in fantastic shape, my seizures are from electrical waves in my brain that cross.
I am seeing a new nutritionist on Friday and physiotherapist. Now under the care of a better doctor my storm is beginning to turn to a shower, I know that a rainbow of hope will appear for me. This experience has affected me terribly but I will bring forth my strength and then I can only grow from it.
Today I have had art therapy and I am at school working on my Australian Studies Assessment on the Australian Flag. I can hardly wait until this afternoon when I will see Mum and be able to tell her all about my day.
I miss my family, home and friends back home, it was a long, difficult year last year being in hospital and away, I thought that this year my life would be moving forward, I would be full of strength and happiness but obviously God's plan is for me to still have some hurdles to cross.
If you watch Parliament today, you may just catch a glimpse of our politicians wearing a grey ribbon for Brian Tumour Awareness Week. I was supposed to be at a special morning tea at Parliament House today to celebrate, I am so disappointed that I could not share such an important occasion for a cause that I am so passionate about.
I wish to thank you all for your words of encouragement they have truly helped me through these last few dark days, I am so blessed to have you all in my life, you are my rainbows.
'When dark clouds fill your sky, remember the sun is always waiting to shine from behind"