25th to 31st May 2013
Good evening everyone. Dainere is not up to writing her Blog this week so she has deputised me to do it. I am afraid I don't possess her incredible and beautiful gift of writing but I will fill you in on her week.
She was so excited to see her Wests Tigers finally have a win, it was a hard fought one at that too. Them winning put a huge smile on her face. The fact that they beat the Cowboys, which is her Nana's team made the win all that more special, as they put her closer to Nana in the footy tipping competition.
Again this week she has not been able to attend school, she is sleeping for roughly 75% of the day, she is having dreadful swallowing issues, incontinence, pressure sores and is terribly off balanced. She is such a fighter though and despite adversity is still able to smile that gorgeous smile of hers that magically lights up the room.
She had visits from her two wonderful palliative care nurses and one from Kaitlyn her incredible physiotherapist. What amazing people they are they have assisted Dainere on this journey above and beyond what would be expected.
Her Occupational Therapist, Bronwen is organising a shower chair for her to make life just that little bit easier when showering her. There are so many useful items available to help those with illness or disability, it is amazing.
We are all so extremely proud of Jarrett's City2Surf Fundraising effort, almost $6000 and to use Dainere's word, this is so splendiferous! He would not be at that amount if it wasn't for people opening their hearts, spreading the word and being so generous. Here again is the link to his everyday hero page to keep spreading in the community. http://www.fundraise.city2surf.com.au/Jarrett_Anthoney90
Speaking of Jarrett, he is not too well at present, he has been diagnosed with shingles, which the doctor has said would have been brought on by stress. Trying to keep up with the hectic demands of Year 12 as well as having Dainere unwell has taken its toll on him.
It is his 18th Birthday on Tuesday, it will be a day of quiet celebration and one of pride for such an extraordinary son and brother.
Thank you for the comments you leave for Dainere, she is humbled and grateful to everyone.