1st to 7th June 2013
Unfortunately, Dainere is unable to write her Blog herself this week again but wanted to keep all her wonderful followers up to date on what is happening.
We were so blessed to have a visit from my parents (Dainere's Nana and Pop) for a few days. Having them around put a beautiful smile on Dainere's face.
This week we also celebrated a huge milestone in Jarrett's life, his 18th Birthday. It was a quiet celebration, but was one filled with love.
Dainere is staying warm either in bed or under her lovely electric throw blanket. She has been sleeping for many hours again throughout the day. Sometimes I find she is staring as if right through me, I wish I could know what she is thinking.
She is still swallowing medicine, her determination conquering again, although it takes her a long time to get the 10ml of panamax and the 30mg of MS Contin which the granules are made up in 10ml of water. Her motive for doing this is she does not want to have the syringe drive inserted, this would provide her with around the clock medication but it is something she has told the doctor and nurses she is not keen to have.
I have been reading some of her very favourite stories from her childhood, they are by Shirley Barber and she writes lovely stories and also illustrated them with the most incredibly imaginative and glorious pictures.
Next week is a week of exams for both Nalani and Jarrett, so the long weekend will see them both with their heads in their books studying. Or should I say using their computers to study as so much of today's education is based on technology.
Jarrett is recovering from his shingles which caused him quite a lot of pain, he was also frustrated as having them stopped him from doing his running training, however he has trained for so many years and so fit, a couple of weeks off won't harm him.
We have all just been absolutely humbled and amazed by the generosity of so many who have contributed to his City2Surf Everyday Hero Fundraising Page. He is now over $9000 and has been busily working on letters and posters to send out to local businesses, hoping to gain their support. Here again is the link to his page if you would like to share it with anyone in your local community who you may think could help. http://www.fundraise.city2surf.com.au/Jarrett_Anthoney90
I think she is catching up to her Nana in the footy tipping, hopefully her Wests Tigers can have a win again this week, that would definitely put a smile on her face.
At school this week Senior School had a very special fundraising day, it was called 'Theodore Day'. The students were able to bring a teddy bear or their favourite soft toy in for a gold coin donation. This was what Dainere would say was a splendiferous idea and is perhaps one that we could expand upon for future fundraising for The Sydney Children's Hospital Foundation Brain Tumour Research Fund.
I can't thank you all enough for the many supportive comments that you have left on the Blog, I have read them all to Dainere, all of you have truly made a difference in her journey.