Saturday, April 6, 2013


30th March to 5th April 2013

Easter was a special time, a time to be grateful for what we have in life.  Easter Sunday marks the day Jesus was resurrected. This is a joyous day for all and reminds us of the promise for eternal life and God's love for us all. As I reflect on Easter, I think of my journey over the past few years, they have been difficult and challenging, yet also a time of many joys and new wonderful friendships.  My journey, which I believe that God has given me for a reason, has inspired me not only to raise awareness about brain tumours but also the so desperately needed funds so that researchers may one day in the future find either a cure, a way of early detection and more successful treatments.

This has been a short week at school which was a relief because after competing in the Cross Country I have been extremely sore and fatigued. 

In Maths we have continued our work on Money Matters, including doing some work with excel spreadsheets.  We wrapped up our unit in Sports Science by listing what improves and diminishes an athletes fitness.  In English we have been working on a Money Matters unit and researching things like tax file numbers, bank accounts, credit, industry awards, buying a car and superannuation.  We have our new novel which we have to read before the first week back at school next term.  The novel we are reading is Lord of the Flies. 

It was wonderful to have physiotherapy this week, with the amazing Kaitlyn working on my right heel and foot using voltaren gel and the ultrasound to try to provide some relief from my stinging pain and swelling.  She also did some work on my neck which is stiff and painful.  Then those absolutely fabulous heat packs provided me with some more relief.

I also had a visit from my care team nurse, my oxycodone has been increased by another ml, I now take 8ml four times a day and can have 4ml breakthrough doses as required.  My panamax remains at 10ml as that is the most I can take of that, as it can cause liver problems if you take too much of it when you have it regularly.  She talked about getting me a lovely soft and comfortable cover to go over my mattress to make it softer, my bed is beginning to feel hard and uncomfortable for me. 

My throat still feels so restricted, it feels as though it is as thin as a straw and I find it frustrating and it is not only when I am eating, it feels that way if I am swallowing saliva and sometimes when I have my neck turned to look at something. 

In footy tipping I am still leading but just by one to Nana, poor Pop has fallen behind, but he is known for his comebacks and it is early yet so he is still in with a chance.  My Tigers are playing Storm this week, I believe in them and hope that they can dig deep and produce a win. 

I sent a cheque off to The Sydney Children's Hospital Foundation Brain Tumour Research Fund this week, it is such a wonderful feeling to be contributing and trying to make a difference.  Every little bit counts, imagine if every person in Australia gave just $1, that would be an amazing $22 981 979.00, this is what our current population is. 
Raising much needed funds for The Sydney Children's Hospital Foundation Brain Tumour Research Fund at my Rainbow of Hope for Brain Tumours Stall

To all the people who have been helping me in my endeavour to raise those desperately needed funds, you are all splendiferous, your hearts are truly filled with love and kindness and I wish you many rainbows throughout your lifetime.


Anonymous said...

Hi Dainiere,
So sad to hear that you are in pain, I hope you get better soon.

I haven't read that novel yet, you'll have to tell me what it's like on the blog.

Only 1 week until holidays!

Congratulations on the money you raised! It is always a special felling when you help someone else, it makes you fell happy as well!

I found a quote you might like, it's from a beutiful song about the love of God, sometimes it is sung in Spanish to children:

May the feet of God walk with you, And His hand hold you tight.

May the eye of God rest on you,
And His ear hear your cry.

May the smile of God be for you and His breath give you life.

May the Child of God grow in you,
And His love bring you home.

lots of hope for your pain to go away,


Anonymous said...

Dear Daniere,
Ollie and I are still reading your blog every week. Even if we don't comment we wanted you to know that we send our love and calming thought to you always. You are our biggest hero and your bravery and courage inspire me daily.
Ollie sends big purrs to Tinkerbelle and hopes she is still being your smoochy bestie.
Not long now to the holidays:-)
Love and purrs,
Catherine and Ollie the cat. Xoxoxoxo

Anonymous said...

Dear Sarah,

I love the beautiful quote you put with your comment. Thank you so much for sharing it.

Love Dainere

Anonymous said...

Dear Catherine and Ollie the Cat,

Tinkerbelle is always near me, she makes me laugh often and is now even fluffier as she is getting her winter coat.

Thank you for you lovely words.

Love Dainere

Dianne said...

Dear Dainere

You are such a good fundraiser and you are passionate about your charity which helps others be as well.

I am nearly at the end of my veggies in the garden; I have some tomatoes, spinach and rhubarb to take to work and sell, the ladies are happy to buy fresh locally grown food and contribute towards seeking a cure for brain cancer.

How did you go with the end of Daylight Saving? I have heard others referring to today as the 25hour day. I think they may be right as many I know tried to pack a lot into today.

Did you like the Lion Hat I showed your Mum - my cat Ruby is the same colour and would look awsome in it :)

Take care and I will get some funds raised to you soon.

Lv Dianne xxxx

Anonymous said...

Dear Dainere,

I hope you are able to rest a bit during the school holidays.

Lord of the Flies was part of the English course when I went to school! Good book. The original movie is worth seeing too. Not sure what the remake was like.

It is good that you are getting the assistance you need.

Hoping for a Tigers win tonight!

Wouldn't it be great to have everyone donate just $1!!

Wishing you a raindowiffic week!



Anonymous said...

Dear Dainere,

We are home again, after almost a month away.

Definitely, the most precious thing I did during that time was meeting yourself, your Mum, Tinkerbelle and Theodore.

I'll be interested to hear what you think about Lord of the Flies. I studied it while at boarding school during Year 11 or 12. During that time we also went to see the film and I agree with Michael that is worth seeing. My friends and I sang 'Kyrie Elison' as we made our way from night study to our rooms. Happy memories!

I hope that you are able to get the soft cover for your bed soon, as it will certainly help to relieve your pain.

Not long till the holidays now, which will give you a chance to catch up on some well-deserved rest.

I loved Steph's quote.

Much love and God bless,

Elizabeth xo

Anonymous said...

That should have been 'Kyrie Eleison' Dainere. It's a long time since I had to think about how to spell that one!

Elizabeth xo