10th November 2010
We just wanted to let you know how Dainere is going.
She is having difficulties maintaining her phosphate levels due to leakage from her kidney's which you already are aware have been damaged from the Cisplatin.
No results as yet on the bone density as they have new machinery which requires conversions to work out the exact results.
Her right foot continues to be painful with the stress fracture, they are looking at her having some physiotherapy of the non-weight bearing type later this week.
She is still off her caltrate as it was stopping the absorption of the phosphate also, she will remain off it and if her phosphate still stays the same then that is obviously the best they can achieve, so she will then be taken off phosphate and given caltrate as it appears she will have to remain on it permanently.
She is now classed as Stage 3 as part of the program, this is the final stage and leads to discharge, it appears it will most likely be in the next couple of weeks.
Once discharged she will be treated by our paediatrician and his team back home, she is not able to go to school for the rest of the year to assist her body to recover. This means that she has missed virtually this whole Term.
She is trying to keep her spirits up and be positive, she really misses family and friends back home, this has been rather traumatic for her. Canberra sounds like it has had many rainbows lately we think they are coming out especially for her.
Jarrett won the 5km Run in the Train for the Brain Fun Run on the weekend, which Dainere was extremely excited about.
Thank you again for your support and lovely messages which we have been passing on to our courageous girl.