7th to 13th May 2011
Dad's Birthday was on Saturday, we all spoilt him throughout the day including having a pizza dinner. Jarrett ran in a 3.2km pointscore Cross Country event and as a special gift for Dad, he won the race easily, gaining maximum points. I also had to have a blood test on Saturday because the one I had on Friday had clots in it. They used my right arm vein which was still bruised from my MRI, the blood flowed smoothly and quickly. Sunday of course was Mothers Day so that was Mum's day to be spoilt, she does so much for all of us so it is one day that we can do some little things to show her how much we appreciate her. For dinner I helped make vegetable slice and match sticks which you use puff pastry, cut it into rectangles, bake them, let them cool, put jam on them, pipe cream on top of the jam, put a lid on and sift icing sugar onto it, as a special touch we also drizzled melted chocolate on top also. They are absolutely scrumptious and we all enjoyed eating them.
Then the week began with me being in hospital, I had to have a glycogon stimulation test, we had to arrive at the hospital before 9am. Once there I had to have a cannula put in, they decided to put it into the right arm vein as it is my best vein even though it was bruised from the test on Saturday. They wrapped my arm in a heated blanket to try to make it a little more comfortable when they inserted the cannula and also to make the vein more prominent. Once the cannula was in, I had to have blood taken, they seemed to be drawing the blood forever but eventually it was finished. To help keep my arm straight they strapped my arm to a special board and then it was time for me to go to my hospital bed for the day. Next they came to give me an injection in my thigh, because I am allergic to EMLA which is a special patch they often use for children to numb the spot where an injection is going to in, they gave me an ice pack to place on my thigh and said it would numb it and make the injection more pleasant. No one has ever suggested this before and I found that it was terrific as my thigh was numb and I did not feel the injection go in. So if you are allergic to EMLA there is something you can do to make an injection less painful. An hour after the injection the nurses came to take blood and check my sugar levels, then every half hour after that they came and took more blood, this happened for three hours. Each time they took two large vials of blood, altogether that day I had 18 huge vials of blood taken from me. They also did two finger prick blood tests, I was feeling quite weak as I had had to fast from the night before and having so much blood taken. Finally I was allowed to eat and drink something and was monitored, they decided that I was able to go home but I was told I could feel rather weak and nauseous over the next days.
They were right because when I arrived home I was so tired I slept, on waking I felt dreadfully nauseous, having some dry retching and terrible stomach pains. Over the next few days the nausea continued and all I wanted to do was sleep most of the day. I was unable to go to school or even attempt to do school work at home. I also found that my walking went haywire, I could not balance properly and could only walk small distances before becoming overwhelmed with dizziness. By the end of the week I was pleased that there had been improvement although I still remained weakened and tired.
I had physiotherapy on Friday, from being in a hospital bed my neck and shoulders had become tight and stiff and my knee had also become tight and painful from walking and being off so dreadfully off balanced. However Rhiannon my guardian angel of physiotherapy massaged my tight, sore areas and used heat to help me, after feeling so horrible all week having physiotherapy was definitely a highlight.
The weather was also appalling this week, it was freezing cold, with arctic winds, sleet and heavy frosts, in a way I was glad to be indoors where the heating was lovely and warm, I could wrap myself in a cosy blanket and cuddle Theodore.
Next week I have more appointments, a lung function test and a visit to hospital to see the Endocrinologist who will hopefully be able to let me know my test results. Last time we saw him he said that I would also have to have more tests that involved staying in hospital for a longer period of time, he was going to tell us about those when we see him.
I am still winning the footy tips, last week I got three out of the four games, so did Nana and Pop so our positions have remained the same. This week could see some changes though and after the Friday night games I got one right and one wrong.
The trees that were covered in red and golden leaves last week are now almost virtually bare, Winter will be upon us very soon but those red and golden colours can remain with us throughout the cold days when we smile, care and help each other. Wishing you all a splendiferous week ahead, rug up and be kind to everyone you meet.