12th to 18th March 2011
'Sometimes we worry too much about the future and brood on the past, life if more splendiferous if we focus on the present enjoying every day to its fullest'
Thank you to everyone who has been praying for my Great Gran, she is still with us fighting, she remains in hospital on oxygen but is becoming a little stronger. This week I received some more devastating news about someone else special in my life, Cate, I have spoken about her before, her son Ash interviewed me for Planet You last year, I was so saddened to hear that she had a heart attack and then two minor strokes within a couple of weeks of each other. She has pulled through but has been left with some brain damage, she is an extraordinary person as she is always helping others, again I am left questioning why it is those who are so wonderful and caring are the ones chosen for the most difficult journey's.
We returned from Sydney to a long weekend in Canberra, which I spent, resting, finishing recovering from my illness and doing some school assignments. On Sunday I went to running training and walked around some of the paths around the grounds of the AIS with my rollator. The uneven surface makes it more difficult for me, as sometimes the wheels of the rollator seem to have a mind of their own but I feel so much more confident with walking with my rollator now. Around the house I do some walking without it, some days I am quite steady but other days my balance is not terrific so I have to use furniture to help me regain my balance.
Tuesday was back to school for a short week, in Science we are learning all about plant and animal cells, it is extremely interesting that a cell is made up of so many different organelles like nucleus, golgi body, ribosomes, mitochondrion and cytoplasm. We have to make a 3D model of either a plant or animal cell, we have to be imaginative when we make it. In English we are working on a character study from our novel 'Holes' the character I am working on is Zero. When I have to concentrate excessively at school I find that my eyes with my nystagmus flicker so rapidly I think they are going to pop out of the socket and it makes my vision extremely blurry. I ended up with a really dreadful throbbing headache and then I had this terrible tingling down my right arm and felt excessively tired so I had to go home. After resting I recovered but still felt rather drained of energy for the rest of the day.
I had a bone age scan on Wednesday, as well as my flu injection and visit to the doctors for my blood test results. The bone age scan showed my bone growth is that of a twelve year old, so my growth is falling behind my chronological age. My blood test results were not the best, I have absolutely no immunity to measles, mumps, rubella, chicken pox, whopping cough, hepatitis A or B or pneumonia. Normally when you have chemotherapy your immune system is attacked but builds back up again however mine is not, I can not have immunisation because of my treatment. There are some other blood tests that have been sent to Sydney for further investigation and they are for blood and immune system diseases, results won't be available for them for six weeks. When I had my flu injection, around the site where it was injected became excessively red, swollen and hot to touch, it lasted for two more days but has now settled not being as large but still a little red and hot to touch.
Today I had physiotherapy which I was ecstatic about because now that I am doing some walking with and without my rollator I am using my calf and hamstring muscles more, but with use they are becoming tight so I was relieved to have them massaged, stretched and released. I also had some work done on my neck as I have continued to have tingling in my right arm which could be coming from my neck as it has exceptionally tight muscles in it. Rhiannon put heat on it also and did some traction, it is much looser but I now have a headache from it being released and that is normal. I did the sit to stand and walk around the stool short walk which I did in 24 seconds and 22 seconds, last time it took me 35 seconds and 30 seconds. With assistance from Rhiannon I did some very slow high knee steps, it was rather scary as I felt really off balanced like I was going to fall flat on my face, then I did some bum kick steps, again I felt quite off balanced but not as much as the high knee ones. I was immensely pleased with my physiotherapy session today.
Nalani has started at the gym, I bet she will be running easily by the end of three months, that will give her time to compete in some of the Cross Country Events which she really loves and either do track in Summer or continue with the Cross Country summer events.
Jarrett is racing next weekend in a Cross Country Junior Point Score event, it is 4.2km, I think he will run a great race, he too loves his Cross Country running. There is always a younger children's race before the main races I am hoping that this season I may be able to go in one of them, even just walking in it.
I wish everyone a splendiferous week full of many rainbow moments.